Monats-Archive: März 2013

The fifth week in the hospital

A new week and new check-ups which should show how the pathways between my legs and head are damaged. These check-ups will measure the evoked potentials which are the electrical signals generated by the nervous system in response to sensory stimuli. The first one would be somatosensory evoked potentials or just SEPs. They consist of a series of waves that reflect sequential activation of neural structures along the somatosensory pathways. The stimulation in my case was done at the tibial nerve (it is on the inner part of the calf. The result of this is important because of intraoperative monitoring during the spinal cord operation. The check-up was done by a really great doctor who was very kind to me and explain the whole procedure to me, so I was very calm and without fear. The result of it was not good. The signals coming from my legs are so low that they are not suitable for intraoperative monitoring. Weiterlesen

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The fourth week in hospital

New week started and there is still only little news which says rather nothing to me and it does not solve my situation at all. However, I am not the only one in such a situation. There are many women who are really very similar – just waiting to be said what it going to happen. Most of them suffer of a kind of cancer connected with their heads or neurological systems. The system here is focused on a patient, but I would say in a wrong way as it does not make a doctor to be responsible for a patient´s stage. They mostly let patients to make decision about themselves without explaining in detail to them what their situation is about. I think patients do not have enough knowledge to be able to make the right decision without having information from the doctor. Weiterlesen

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Third week in hospital

I was finally transferred to the other hospital where I should have been operated. As I was leaving, my surgeon told me the operation would be at the end of next week. The new hospital did not look very good – I really did not like the rooms and also the people do not look very friendly, so during the enter check-up I was so nervous that they could hear my heart beating as they were measuring my pressure. Weiterlesen

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The second week in hospital

The second week started and I have still been waiting for some news. I have tried to talk to the doctors here, but they only told me that I must be informed by my surgeon who is not very often here. Weiterlesen

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New troubles- new start…

As a disabled person you face not only the change of your entire health. You also have to face the system and the other people which can be quite tough sometimes. Most people have no idea what it means to be disabled and what everything is included in it. Weiterlesen

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